Narrative e-Writing Intervention (NeW-I) - Supporting the Psycho-Socio-Spiritual Needs of Parent-Caregivers of Children with Chronic Life-Threatening Illness
Narrative e-Writing Intervention (NeW-I) is a novel psycho-socio-spiritual intervention that aims to bridge gaps in paediatric palliative care by providing anticipatory grief support to parent-caregivers who are looking after their child with a chronic life-threatening illness.
This is done via a therapist-facilitated smartphone app that focuses on strengths and meaning derived from parents’ caregiving journey. NeW-I is empirically informed by an international systematic review, an Asian qualitative inquiry on the lived experience of parental bereavement, and supported by anticipatory grief interventions literature, and was piloted in Singapore via an open-label 2-armed Randomised Controlled Trial.
In this webinar, Dr Andy Ho will present the theoretical underpinnings and applied practice of NeW-I, highlighting its clinical efficacy in reducing parent-caregivers’ burden while enhancing their perceived social support, spiritual wellbeing, sense of meaning, peace, hope and quality of life in the midst of grief adversity.
Andy will also share results from an acceptability and feasibility study on the implementation science of this novel intervention. He will discuss the study’s findings in the light of existing e-health literature, with practical recommendations for enhancing parental bereavement support services in contemporary societies.
By the end of this webinar, participants will:
- understand the lived experience of parental bereavement and child loss from both international and Asian perspectives
- be able to identify the gaps in existing paediatric palliative care provision through the lens of psycho-social-spiritual needs and anticipatory grief among parent-caregivers of children with chronic life-threatening illness
- understand the theoretical foundation of a novel Narrative e-Writing Intervention for supporting parent-caregivers of children with chronic life-threatening illness
- be able to describe the implementation science of NeW-I in relations to intervention acceptability and feasibility
- be equipped to consider how similar e-counselling approaches can be applied to support parent-caregivers of children with chronic life-threatening illness.
About the presenter
Dr Andy Hau Yan HO, PhD, EdD, MFT is the President of the Association for Death Education and Counselling (ADEC), and Board Director of the prestigious International Work Group on Death Dying and Bereavement (IWGDDB). He is also the Head and Associate Professor of Psychology, and Honorary Associate Professor of Medicine at Nanyang Technological University. A social scientist, psychologist and educator, he specialises in the research and teaching of public health palliative care, psychosocial gerontology, positive psychology, integrative therapy and community empowerment.
He has founded several innovative and internationally acclaimed psycho-socio-spiritual interventions for health promotion, including Mindful-Compassion Art-based Therapy (MCAT) for caregiver support, Family Dignity Intervention (FDI) for advancing holistic palliative care, and Narrative e-Writing Intervention (NeW-I) for augmenting paediatric palliative care. Dr Ho has authored over 120 top-tier publications as well as presented more than 200 keynote and plenary sessions across the globe including his recent TEDx Talk on ’Art-Based Storytelling: A Powerful Tool for Healing and Sharing’, while his social and scholarly contributions are recognised with numerous distinctions and awards by academic, professional and government bodies around the world.
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This webinar was recorded in July 2023.